Parents and actors Boris Kodjoe and Nicole Ari Parker recently opened up in PEOPLE magazine about their 4-year-old daughter Sophie’s battle with spina bifida, and now the couple has talked with CBB as well! We spoke to the couple just before the R Baby Mother’s Day Run/Walk in Central Park.
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Boris: Well we have hope, obviously medicine evolves. We’re supporting a surgical study called the Dr. Xiao Procedure, which is a revolutionary surgery that could potentially change people’s lives.

Nicole: Not just kids with spina bifida, but adults who’ve had some kind of spinal injury from sports or a car accident. It’s basically rerouting a nerve from your leg and sticking it to your bladder, and observing you post-surgery to see if the neurological electrical impulses will signal the bladder to open and close automatically instead of spasming.
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We’re also dedicated to helping modern medicine evolve, like the Dr. Xiao Procedure. So it’s really a three-tiered effort: Prevention and education, support and outreach, and thirdly, funding clinical studies that we can get approved by hospitals and making sure they’re available to the public once they’re approved.